How can I meet other parents and families in a similar situation?

We have a team of Children, Young People and Family (CYPF) Coordinators. They can tell you about parent-led support groups in your area. They also run a range of family weekends, family days, actionnaires clubs, multi-activity clubs and groups for children and families.

Contact your local action team directly or contact our Helpline on:

You can also look at our information for parents of blind or partially sighted children which includes the information that parents who have 'been there before' say they would have liked to have known when they were finding out about their child's situation.

There are also often parents having conversations relating to children and young people with sight loss at general parent support websites such as mumsnet or netmums.

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Right now we can only reach one in three of the people who need our help most.

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