My child has been diagnosed with a sight condition. What happens now?

As it's often difficult to take in everything you are told when first faced with any diagnosis, it is important to ask for written details of your child's condition. 

If you are unsure about anything after your visit, ring the hospital and ask the consultant's secretary if you can have a written report or ask your GP to follow up for you. You should be prepared that it may take a number of visits to the hospital or eye clinic before there is any clear information to give.

 

A number of eye hospitals have Sight Loss Advisers (also known as Eye Clinic Liaison Officers or ECLOs).  ECLOs can spend time with you, to talk through any concerns you have and provide you with further information and contacts. 

It's also important to ensure you are linked into your local authority sensory (VI) team. You can find your local team on the Sightline Directory by entering your postcode and the search words 'local authority' or 'sensory services'.

Once you are in touch with them, they can help you understand your child's eye condition and support you and your child with their development and educational needs. They normally work with you at home or at your child's nursery or school setting.

If you live in Scotland you can find further information about eye conditions which affect children on the VINCYP (NHS Scotland) website.

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